Yoga Marathon

I mentioned that it was my intention on Friday morning to attempt a yoga mini-retreat. Yes I intended and I succeeded.
Don't get me wrong. I am not talking about 3 hours of American-style aerobic non-stop yoga, without pause for breath and sweat dripping off me in bucket-loads. This was calm, focused, easy, beginners yoga, with poses and counter-poses, meditations and breathing exercises. As I wrote to my husband in an email at lunchtime Friday; "Completed a three hour yoga marathon! Without one breathless, ouch or creaking moment!"
What really helped me in this was something I learned during the week from a study I was reading, by Dr Nancy Klimas. Dr Klimas runs an ME/CFS treatment clinic in Miami and has completed a lot of research on the subject, at the University of Miami. Her studies have found that the crucial thing about doing activity, and doing too much activity in ME patients is the way that the breathing and heartbeat are working together. As soon as aerobic activity becomes anaerobic activity (which can be in as few as 2-3 minutes) the cells in an ME patient need to search for more energy and start using reserves which simply aren't there. Only by limiting aerobic activity, to that short amount of time and interspersing it with equal amounts of time spent resting, can the cells regenerate energy, without seeing the desperate daily or hourly crashes and exhaustion. Until I see a vast improvement in my energy levels, which will suggest I can last longer in aerobic activity before moving into anaerobic activity, will I let myself get breathless without checking in and slowing down or resting.
This is probably the main reason that so many patients have recovered from ME by practising Yoga and slowly increasing their stability. If you can breathe you can practise Yoga. On a bad day, I know I can lie in bed and practise breathing and also meditate.(that sounds daft-I do know how to breathe!) On better days I can hold poses and stretch my limbs out to encourage flexibility and slowly iron out all those creaks and aching joints that still haunt me. I enjoyed Friday's mini-retreat and until I can make it to a regular class with a hands on instructor to guide me through some of the more complicated poses, I intend to continue as I am with my new accessible technology-wise classes and a friendly Yoga website to answer any questions should I have them.

I have been using these two wonderful websites, with YouTube and iTunes podcast links, and both have answered any questions whenever I have asked
Yogaempowered (link)
And Namaste Yoga (link)

Crash

This is a stage of the illness which can come and go, but is generally the first initial realisation of having something seriously wrong.
The Crash stage is defined as absolute exhaustion, total and utter desperation for relying on others and no real chance of achieving anything through the day.
The main problem for this stage is that action has to be taken to remove yourself from it. All obligations have to be cleared and bed rest is the answer. Crash leaves muscle aches, headaches, joint pain from slightest movements, possibly even constant nausea and very little energy to eat and digest food and drink- for this reason indigestion is another symptom that will rear it's ugly head.
Bed rest can be boring, tedious, never-ending; leaving a feeling of desperation and through this a glimpse of optimism has to be found somewhere. Acceptance of the situation is the first step- which might take a coupe of days as dips and crashes can be confusing, usually for me a sore throat is the first sign that something isn't quite right. After acceptance come action: sleep, rest, sleep rest!
It is at these times when I keep in touch with the world through TV and radio, newspaper reviews and weather forecasts. Looking forward to particular programmes everyday, but avoiding depressing soaps and films. Chat shows and magazine shows are great for the short attention span needed and I would also watch DVDs of TV series - again looking forward to the next episode as it helped the time pass. I also joined Facebook so that I could become part of daily life and find out what friends were up to just half a mile away. Emails everyday, or when I was able, became a good source of encouragement too.
It may seem like a giving-up option, but when bed rest is needed, for the body to heal this is a good option. By scheduling a sleep every afternoon I had a good indicator of when more activity can be added. As the weeks went by I noticed that less and less sleep was necessary, so I added little activities instead. I bought a few magazines to read, managed a bit of knitting, started searching and reading more about the illness online everyday and this was combined with a little yoga on a daily basis, with meditations and audio books.
If recovery is not monitored with careful pacing or little obstacles appear that are unavoidable like a virus or family situation, crash will happen during recovery. It will be less of a disastrous crash; more of a hiccup, but similar responses are required. Complete bed rest being one and just slipping back to a quieter routine, being another. I know one of the best things for me in these times is to avoid leaving the house, cut myself off from visitors and give myself some space. A couple of phone calls every week and an afternoon sleep every day, keeping my diet healthy and accessible, with a favourite DVD set or book to read is what usually helps me. After a couple of weeks of floating through I feel better able to pick myself up and keep going. Crash (or even just a little dip) requires acceptance and action.